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Pinkburst Project site is now live!
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SMFWebmaster
Posted 2011-01-14 6:41 PM (#26511)
Subject: Pinkburst Project site is now live!
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Geek-in-Chief

Posts: 606
500100
Location: Noo Yawk
Okay, we just launched The Pinkburst Project web site! Go and have a look at what a few of us have been jabbering about - I guarantee you'll be impressed.

Here's the first YouTube video on the new Pinkburst Project channel. Jay Jay explains the reason for the Pinkburst Project.

Much more to come...

- D
George
Posted 2011-01-15 11:09 AM (#26520 - in reply to #26511)
Subject: RE: Pinkburst Project is getting closer...
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Nearly A Band Member

Posts: 2072
2000501010
I wish this project and Jay Jay's daughter and all the families involded the very best. I hope they make a lot of money and they find a cure.
Richard UK SMF
Posted 2011-01-15 2:23 PM (#26527 - in reply to #26511)
Subject: RE: Pinkburst Project is getting closer...
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Nearly A Band Member

Posts: 307
100100100
Location: Newcastle UK
Thanks webbie, great update. I can't wait to see the new website and for such a great cause. I hope it raises funds in bucket loads and wish Jay Jay and Samanatha all the best in the search for a cure.

I have Jay Jay's Pinkburst Epiphone Elitest guitar and love it along with a Musicman Luke in Candy Red and a Yamaha APX700 in Red sunburst, spot the themes!!!!!!!!!!! I really would love to add the Roukangas guitar to my collection and I see that you rate it, what was the PRS like to play?

Richard UK SMF
Armadillo
Posted 2011-01-16 1:07 PM (#26532 - in reply to #26511)
Subject: Uveitis in my family
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Road Reporter

Posts: 1729
10005001001001010
Location: Baltimore, MD
So I was telling my mother today that I'm planning to go to Boston for the Pinkburst benefit to help raise money for research for an eye disease. And before I could even spit out the name of the disease, I found out....My grandmother has Uveitis!

She was treated for it for several years, long before I was born--my grandmother was just a young lady at the time. Her doctors had never heard of the disease, and she went to a specialist here in Baltimore who treated her aggressively with medications that made her extremely sick....but she was told that it was either the drugs or her eyesight. The medications they used are no longer on the market, and caused her to be bedridden for months at a time and crippled her. Her disease went into remission about 40 years ago and it never returned thankfully. She is currently 98 and still has her eyesight.

But I couldn't believe it-- I had NO IDEA! Now the Pinkburst project has even more meaning to me.
Fast Joey
Posted 2011-01-16 3:34 PM (#26534 - in reply to #26511)
Subject: RE: Pinkburst Project is getting closer...
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Destroyer

Posts: 545
50010101010
There are no coincidences. You became an SMF for a reason! Now you know.  
Jim Hudson
Posted 2011-01-25 3:04 PM (#26633 - in reply to #26511)
Subject: RE: Pinkburst Project site is now live!
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100010010010
Location: Rocking In The Florida Dark !
It seems to be kind of distressing to hear of stories like Samantha's, but think its awesome that she can still have 20/20 eye site I can only imagine the stress of having a child with such a problem as this. I certainly think its a awesome cause and if there is anything I can do to help please let me know. via the site or contacts involved peeps have.
All my best JJ and Samantha !


------------
Enjoy today as whom knows about tomorrow !
George
Posted 2011-02-06 11:41 AM (#26753 - in reply to #26511)
Subject: RE: Pinkburst Project site is now live!
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Nearly A Band Member

Posts: 2072
2000501010
I found this mention in a mother's blog. Her son has uveitis. You realize how important this cause is. Makes me very proud of Jay Jay for helping bring awareness to the cause in the best way he can.

One of the biggest concerns, we as parents have regarding Juvenile Arthritis and Uveitis is the lack of awareness. For a disease that affects more than 300,000 kids, not to many people have heard of it. We are always looking to spread awareness. I was just on Dr. Foster's site and came across someone spreading awareness. Jay Jay French from the band Twisted Sister is raising awareness. His daughter at 6 years old was diagnosed with uveitis. She has traveled the road like a lot of our kids. You can read about Jay Jay's mission and fundraising to support this cause. His project is called The Pinkburst Project. Click on it and see what he has planned! Go Jay Jay spread awareness.
George
Posted 2011-02-10 9:17 PM (#26798 - in reply to #26511)
Subject: RE: Pinkburst Project site is now live!
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Nearly A Band Member

Posts: 2072
2000501010
Q104 is running an ad

http://rewards.q1043.com/asp3/ContestDetail.aspx?aid=127402

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